Comments on: Sternal cleft: repair or not repair? Mother’s questions to a scientist http://www.margaperez.com/2009/05/sternal-cleft-repair-or-not-repair/ Sun, 28 Feb 2010 10:15:14 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Jane http://www.margaperez.com/2009/05/sternal-cleft-repair-or-not-repair/comment-page-1/#comment-511 Jane Wed, 19 Aug 2009 17:15:03 +0000 http://www.margaperez.com/?p=194#comment-511 Scars heal, definately if you get it done when she's only 4 by the time she is 24 it will be barely visable. are there any health risks to not doing this? to doing the operation? its a tough decision and we really dont want to be responsible for making the wrong choice as mothers. but we can only do our best using our best judgement with the resources we have available. i would try and ask myself what would i have liked my mother to have done if it were me? - i think I would like the operation instead of the cleft. Scars heal, definately if you get it done when she’s only 4 by the time she is 24 it will be barely visable. are there any health risks to not doing this? to doing the operation?
its a tough decision and we really dont want to be responsible for making the wrong choice as mothers. but we can only do our best using our best judgement with the resources we have available.
i would try and ask myself what would i have liked my mother to have done if it were me? – i think I would like the operation instead of the cleft.

]]> By: Access to scientific information and support about sternal cleft: comparison of three sources / esphères identitaires http://www.margaperez.com/2009/05/sternal-cleft-repair-or-not-repair/comment-page-1/#comment-501 Access to scientific information and support about sternal cleft: comparison of three sources / esphères identitaires Thu, 06 Aug 2009 11:03:17 +0000 http://www.margaperez.com/?p=194#comment-501 [...] explained in Sternal cleft: repair or not repair? Mother’s questions to a scientist, I’m presently looking for scientific information and support to make an informed decision [...] [...] explained in Sternal cleft: repair or not repair? Mother’s questions to a scientist, I’m presently looking for scientific information and support to make an informed decision [...]

]]> By: Frances Bell http://www.margaperez.com/2009/05/sternal-cleft-repair-or-not-repair/comment-page-1/#comment-403 Frances Bell Thu, 07 May 2009 18:43:00 +0000 http://www.margaperez.com/?p=194#comment-403 Marga, I don't know you but I think I know a coper when I spot one;) Enrol the best support team of friends/family that you can. Everyone needs attention - you, the child at the centre of attention and the others who'll be anxious and feeling a bit left out. All I can say is that kids are remarkably tough and can be very young heroes in this situation. One of my children made an independent train journey with younger sib to stay with friends when we were preoccupied with older sib undergoing surgery. It turned into a great achievement for him and he became a confident independent traveller. It's not all bad! Marga,
I don’t know you but I think I know a coper when I spot one;) Enrol the best support team of friends/family that you can. Everyone needs attention – you, the child at the centre of attention and the others who’ll be anxious and feeling a bit left out. All I can say is that kids are remarkably tough and can be very young heroes in this situation. One of my children made an independent train journey with younger sib to stay with friends when we were preoccupied with older sib undergoing surgery. It turned into a great achievement for him and he became a confident independent traveller. It’s not all bad!

]]> By: Margarita Pérez-García http://www.margaperez.com/2009/05/sternal-cleft-repair-or-not-repair/comment-page-1/#comment-397 Margarita Pérez-García Tue, 05 May 2009 21:26:49 +0000 http://www.margaperez.com/?p=194#comment-397 Hi Frances, thank you so much for stopping by and leaving a comment. The idea of the support team that include a psychologist is a good one. Definitely, I'm going to contact the hospital and ask if such a support team exist. I would really like to be in contact with psychologists that work in the same environment. But I'm also extremely worried about the after surgical intervention period, one little patient suffering and asking for extra-care, competing for attention with 3 other children. Hi Frances,
thank you so much for stopping by and leaving a comment. The idea of the support team that include a psychologist is a good one. Definitely, I’m going to contact the hospital and ask if such a support team exist. I would really like to be in contact with psychologists that work in the same environment.

But I’m also extremely worried about the after surgical intervention period, one little patient suffering and asking for extra-care, competing for attention with 3 other children.

]]> By: Frances Bell http://www.margaperez.com/2009/05/sternal-cleft-repair-or-not-repair/comment-page-1/#comment-395 Frances Bell Tue, 05 May 2009 12:12:59 +0000 http://www.margaperez.com/?p=194#comment-395 Hi Marga, I am not a scientist but as a mother of three adult children, one of whom had extensive surgery for cleft lip and palate and another had surgery for scoliosis, I feel great empathy for your dilemma. You are so right to fully explore the alternatives. One thing occurred to me - could you find a support team (say including a psychologist) who could help you make the decision with your daughter? ( I am assuming that the surgeons would recommend surgery if the condition was likely to be progressive and debilitating.) I know that she is very young but she may be able to engage and that would increase her confidence in the decision, whatever it is. Best wishes - I am sure you will make the wise choice - then commit to it. We can only do our best. Hi Marga,
I am not a scientist but as a mother of three adult children, one of whom had extensive surgery for cleft lip and palate and another had surgery for scoliosis, I feel great empathy for your dilemma. You are so right to fully explore the alternatives. One thing occurred to me – could you find a support team (say including a psychologist) who could help you make the decision with your daughter? ( I am assuming that the surgeons would recommend surgery if the condition was likely to be progressive and debilitating.) I know that she is very young but she may be able to engage and that would increase her confidence in the decision, whatever it is.
Best wishes – I am sure you will make the wise choice – then commit to it. We can only do our best.

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